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Introduce yourself and welcome new members!Recent Discussions
It is World Down Syndrome Day today
World Down Syndrome Day is marked each year on March 21, beginning in 2007. The 21st day of March was selected to signify the uniqueness of the triplication of the 21st chromosome which causes Down syndrome. The General Assembly of the United Nations has decided to observe it each year since 2012.
The theme for World Down Syndrome Day 2025 is all about support.
Everyone needs support sometimes. The support that we may need will be different for every person, and that’s just the same for people who have Down’s syndrome. Getting the right support at the right time opens up opportunities for people who have Down’s syndrome; so they can live the lives they want, giving them choice, control and dignity. Families also need support, to care for and advocate for their loved ones.
Information is available on the Down's Syndrome Association's website https://www.downs-syndrome.org.uk/our-work/campaigning/world-down-syndrome-day about the day and the support available to both professionals and parents/carers.If you are teaching pupils who have Down's syndrome there are some amazing resources available: https://www.downs-syndrome.org.uk/about-downs-syndrome/lifes-journey/children-families-and-education/ and lots of free training you can access at a time that works for you: https://www.downs-syndrome.org.uk/our-work/services-projects/training/ The DSA also offers a free helpline for any questions you might have https://www.downs-syndrome.org.uk/contact-us/Happy World Down Syndrome Day! Do share any of your school WDSD celebrations pics here... I would love to see them
Hello - new member
Following Torie's email I thought I would join the research hub and introduce myself.
I am in the very (!) final stages of my doctoral research which was an exploration of education inclusion/exclusion for disabled pupils undertaken with mothers of children who have Down syndrome.
I also work freelance for the Down's Syndrome Association as their Education Advisor, as well as being co-director of Special Needs Jungle and volunteering for other SEND related organisations/a local homeless charity. I am a lead-group member of the SEN Policy Research Forum too.
I look forward to being involved and getting to know you all.
Hello - I have joined the SEND Network with a couple of hats on.
I am in the final year of my Doctoral research at the University of Birmingham (in the School of Education). I started my research in 2019 and then Covid hit so it has taken me slightly longer than anticipated to complete. I am, however, now in the final writing-up stage at last. My research explores parents' experiences of education/inclusion of children who have Down syndrome. Over an academic year, I took part in ongoing conversations with seven mothers of children who have Down syndrome, discussing their views and experiences of what it means for their child to be meaningfully included in education settings. I am looking forward to being able to share the findings with this Network in the coming months.
My second role is that I recently joined the Down's Syndrome Association as their Education Advisor, and I am currently working on a new project about inclusive education, looking at what educators might need in their day to day working life to feel more willing and confident to include children who have Down syndrome in their classroom. I know from my personal experiences as a mother, and also from my research, that there is some amazing innovative inclusive practice taking place across the country, and I will be looking at how to find out more about what is happening on the ground and to be able to bring together school leaders and practitioners to share those experiences and best practices. I am not a teacher myself, so I will be relying on the expertise of others in the room for that aspect!!
Edited to add - I am also a lead member of the SEN Policy Research Forum. We publish a range of information/host events that you might be interested in. Here's a link to past policy papers which you might find helpful: https://senpolicyresearchforum.co.uk/past-policy-papers/
I am really looking forward to being part of this Network - I am aware there are policy changes afoot, so it is a somewhat interesting time to be undertaking these projects
Lovely to meet you all :)
Sharon